The international Care-for-Rare Alliance is a network of renowned doctors, scientists, researchers, and clinicians committed to helping children with rare diseases through translational and interdisciplinary collaboration.
The Global Care-for-Rare Alliance grows and evolves each day to serve our ambitious mission—to cure all children with rare diseases worldwide.
A core value of Care-for-Rare is that every child regardless of race, ethnicity, nationality, socioeconomic status, and religion has access to the life saving diagnostics, treatments, and cures that they inherently deserve. The Global Alliance is one way we act upon this value.
Global cooperation is critical to curing rare diseases. While the incidence of specific genetic mutations and diseases may be extremely low in one country or population, occurrences worldwide allow for more robust study, understanding of, and development of treatments for, rare disease patients. The wider our geographic reach and the stronger our ties to global partners are, the more we can share data effectively, understand disease mechanisms, and work towards treatments and cures for patients worldwide.
We support increased research on primary immunodeficiency (PID), with robust and growing partnerships in the Middle East, Northern Africa, Southeast Asia, and South America. Many Alliance partners also focus their research collaborations on rare diseases of the blood, bone marrow, and the immune system.
The Alliance connects centers of excellence around the world with hospitals and universities in low- and middle-income countries that historically have not had access to robust resources. Care-for-Rare is actively working to change this disparity through data-set sharing, educational collaboratives, and the future establishment of Care-for-Rare Local Excellence Centers that will provide knowledge and educational activities to the skilled clinicians and researchers in developing nations.
The Care-for-Rare Global Alliance Program consists of many different individual networks. In total we connect more than 50 countries and around 200 institutions worldwide. Our Alliance also continues to implement and fund activities of our former DAAD funded Thematic Network „Ten for Rare: Research for Rare Diseases and Personalised Medicine“.